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Wheeling tips from a long time wheeler

I have been using a wheelchair nearly full time in public for a decade now.  Over the years, a lot of my pre-conceived ideas about using a wheelchair have gone by the wayside.  Here are some of the things I’d say to someone new coming to using a wheelchair.

  • Relax.
  • There is no right way.
  • You don’t really need a story.
  • Don’t wheel too close to home.
  • Don’t do anything that could impact negatively on the next wheeler that comes after you.
  • Actual tips about wheeling.

Relax

Perhaps the most important thing to keep in mind is to relax, and take your time.  The more tense you are, the less pleasant the experience will be.

There is no right way

Nor is there really a wrong way. There are so many disability types and each disability impacts on people so differently that there is not one right way to push a wheelchair, or one wrong way to do so.  Two people with the same level of SCI will have completely different impact in their ability to do things.

There are obviously things you shouldn’t do, like jumping out of the wheelchair and walking (unless you have a mean humorous streak and start yelling “Alleluia, it’s a miracle!”, but that’s not such a good idea anyway…)

By and large, however, the right way is the way that works for you.  If you understand how your “preferred” disability would affect you, you’ll be better able to know what you can and can’t do.  For example, a high level SCI wouldn’t allow you to easily bend down to pick things off the floor, or get back up in a sitting position.

You don’t really need a story

While it’s good to think ahead of time of what you might say if you’re asked why you’re in the chair, you don’t really need to have a story.  It is perfectly all right to say that you don’t want to talk about it.  Nosy people are nosy and should be put back in their place (nicely) at times.

Of course, you may *want* to chat with them, and discuss your “disability”. Perhaps for you, part of the fun is to be able to talk about why you’re wheeling (not the real reason).  If that’s the case, just make sure you don’t over complicate the story so you paint yourself into a corner.  Much better to avoid lies where you can.

Don’t wheel too close to home

Well, that’s probably obvious, but…  You don’t want to get caught wheeling by someone who doesn’t’ know you are into wheeling. It’s not a bad idea to always go to the same area in the chair, and only go there as a wheeler.  Chances are that people won’t notice.  They’d not think twice about seeing you walking and seeing you wheeling and thinking you’re the same person.  But if your face becomes known well enough, people might question.

In general, people don’t look closely at wheelers.  But go often enough at the same place, in the same store, at the same movie theatre, particularly in a small town/city, and you’ll become known.

Don’t do anything that could impact negatively on the next wheeler that comes after you

Above all, be respectful.

You don’t want to do something stupid that might impact how the person after you will be treated.  For example, don’t go and ask a passer-by to change your diaper.  No one with a disability would do that (unless they were on the verge of dying, and even then…).  It’s one thing to ask for help getting a can off from a high shelf at the grocery store, another to do what I mention here.

So, think, use common sense (which isn’t so common, I know).

Actual tips about wheeling itself…

Well, I won’t give you much of that.  You have to figure it out for yourself.  What works for me won’t necessarily work for you.

The one thing I would say is, if you practice wheelies, which I know you will (who wouldn’t?!?), and you feel yourself falling backwards; tuck your head in, chin against chest.  Like that, you’re going to hit the ground on your back.  You may be winded a bit, but you won’t crack your skull.  While it might be embarrassing explaining to the EMS crew why you are lying with a broken skull beside your wheelchair that you don’t “really” need, the thing is, you don’t really want a TBI.

The rest, well, get yourself in a chair, and wheel.  You’ll get dumped out a few times, you’ll get stuck a few times, and you’ll work out what is the best way to handle each situation.

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5 Responses to Wheeling tips from a long time wheeler

  1. Elisabeth says:

    I started wheeling a few weeks ago in my town and when the clerks in the stores (where I used to go quite often on foot) ask me what happened, I just say “I’m fine, this is temporary” and most of them just wish me speedy recovery. Had only one nosy librarian trying to get more info if I had a surgery and I just repeated my sentence again and she finally gave up. Yes, I am fine, never felt better and temporary means a lot of things.
    The tricky thing is about transfer. As I don’t have an accessible parking placard, I just park normally and slowly walk to get my chair from the trunk. Nobody dares to ask about that! After all, it’s not only paras who use wheelchair.
    Another tip is to always make sure that you know that there are no non-accessible curbs or too steep of a hill where you are going. You don’t want to end up getting off because you need to push the wheelchair. And if you mess up, like going up a ramp not straight and ending up rolling back, just laugh it off and if someone was watching you at the moment, just shrug your shoulders and smile at him.

  2. Isis says:

    I have been a full time manula & electric wheelchair user for about 10 years. I think most non disabled people assume if you use a wheelchair you can’t walk & that’s rubbish .. 90% of wheelchair users can walk. They might not be able to walk far, but its not the point. My disabled boyfriend could walk all the way round tesco’s if he wanted, and not because he’s a pretender! I think the first thing you said, relax, that’s the best bit of advice you can give! This is about you, your needs, your impairment, you make up the rules as you go along 🙂

  3. Wheelieblind says:

    I know at least 4 people who use wheelchair and can walk because they need a walker or something to hold on like this one lady I went to school with who would use a wheelchair for most of the day and then walk holding on to stuff all the way, to get to high up stuff in her home, and her house wasn’t something you could easily move around in a wheelchair with for the most part.

  4. W. T. Brian says:

    I use a wheelchair because of arthritis and bursitis. I can walk with crutches, or just a few steps without. For me, it’s all a matter of how much pain I’m willing to put up with at a given moment. Otherwise, wheeling is just faster and more efficient.

  5. Tracy says:

    I’m planning to use a wheelchair for times when I’d need to be on my feet and/or walking for a long time. I have chronic pain and lyme disease, and when I’ve tried to have a “normal” day in recent months, which included a lot of walking around, I’d end up in horrendous pain, searching for a place to sit or lay down wherever I went. I’d “pay” for it by being stuck in bed in terrible pain for days afterward. So, yes, I can walk, but it’s not always worth it for me. I have a friend who also has a bad case of lyme disease, and she got herself a wheelchair and says she’s never regretted it. She gave me the idea to go ahead and get one.. I’m tired of having to decline outings that include walking, (going on long walks is one of my favorite things to do) so this should help. The most debilitating pain that I have is in my pelvic area..it hurts so bad I wish that the whole area could be numb..I think it would be better than the pain, even if I had to give up the ability to walk, hold my bladder, etc. I really hate pain..it drains all the life out of me, and I’m so very fatigued all the time.

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